Posted by Hypersomnia Foundation on September 15, 2015 Crash Course: Public School Accommodations for Children with Hypersomnia By Kate Pece, M. Ed. In this series of 4 articles, you will learn how to navigate the public school system for accommodations under a 504 plan. This first article gives a broad overview of initiating the process…
Raising Awareness of the Underpinnings of Hypersomnia
Posted by Hypersomnia Foundation on September 8, 2015 Awareness of disease means different things to different people. One’s awareness takes origin in experiences and goals, both personal and professional. Diversity in awareness therefore comprises our community of people who have hypersomnia, their significant others, healthcare professionals, and research scientists. People who have hypersomnia need to…
I Will Not Go Gentle Into That Night
Posted by Hypersomnia Foundation on September 2, 2015 At what moment does one admit to themselves, family, and the world that they have more than a passing penchant for sleep as well as have cognitive issues? To be sleepy or “getting caught” napping evokes societal stigmas, e.g., “lazy,” “unproductive,” “disinterested.” Impaired cognition attracts its own…
Wellsprings of Hope
Posted by Hypersomnia Foundation on August 14, 2015 …. if one advances confidently in the direction of his dreams, and endeavors to live the life which he has imagined, he will meet with a success unexpected in common hours. Henry David Thoreau, Walden: Or, Life in the Woods Just shy of a month ago, our…
Why Do I Fool Myself?
Posted by Hypersomnia Foundation on August 4, 2015 Every night as I head to bed, there’s this moment of joy and comfort I experience, which I assume most people experience at least every now and again—that feeling after a long day of work or maybe travel, that you will finally get to lie down and…
Antibiotic May Decrease EDS in GABA-related Hypersomnia
Posted by Hypersomnia Foundation on July 28, 2015A study of clarithromycin in the treatment of GABA-related hypersomnia indicates that this drug may be effective in some patients with idiopathic hypersomnia (IH), narcolepsy without cataplexy, and subjective hypersomnia.BackgroundThe US Food and Drug Administration (FDA) has not approved any drugs for the treatment of IH. Therefore, current treatments…
Online Support Groups
ASAA Apnea Support Forum http://talk.sleeptember.org/ Sleeptember® is a patient-led…patient-supported campaign designed to create fun and engaging online and community events in order to raise awareness of the public health impact of sleep loss, connect the dots with other comorbid health conditions, raise funds for medical research, advocacy efforts, …
Non-US Sleep & Sleep Apnea Patient Organizations
Apnoevereniging http://www.nvsap.nl De ApneuVereniging is een patiëntenvereniging. Wij willen de kennis over slaapapneu in Nederland verbeteren bij het publiek en bij professionals. Dit moet er voor zorgen dat de ziekte op tijd wordt gesignaleerd en dat iedereen de behandeling krijgt die daarvoor nodig is. Blijf ook op de hoogte en steun onze belangen: wordt ook…
State & Regional Sleep Societies
California Sleep Society http://www.californiasleepsociety.org The California Sleep Society (CSS) has been organized for scientific and educational purposes, and to act as a voice for sleep professionals in the State of California. The CSS promotes and provides education in polysomnography and sleep medicine as well as increased public awareness of the field. The CSS encourages and…